5 Steps To Take After A New Parkinson’s Diagnosis
For many, the diagnosis of Parkinson’s isn’t entirely surprising since symptoms can start years earlier. However, accepting and navigating this new reality can take some time. If you find yourself in this position, you are not alone. Once you are ready, there is a large Parkinson’s support system waiting to help full of local, national, international, and virtual resources. Here are a few helpful first steps to take as you begin your Parkinson’s journey.
1. Find a movement disorder specialist
A movement disorder specialist (MDS) is a neurologist who specializes in Parkinson’s and related conditions. Parkinson’s affects everyone differently so it’s important to have a physician who understands your disease process from the beginning. A movement disorder specialist should be at the forefront of your Parkinson’s care team ensuring you are on an appropriate regiment from the start. You can search the directory here to find a MDS near you. Many large hospital organizations have movement disorder programs, which can connect you to various health professionals and provide a cohesive approach to your Parkinson’s care.
2. Do a course of therapy
A referral to physical, speech, and/or occupational therapy should happen with a new Parkinson’s diagnosis. A therapist who specializes in Parkinson’s is another important part of your care team, especially since you will likely have more than one course of therapy during your Parkinson’s journey. The LSVT BIG® protocol, administered by certified physical and occupational therapists, can help in the early stage of Parkinson’s to combat against movements getting smaller or slower. The LSVT BIG program helps with large motor tasks, such as walking or standing up from chairs, or fine motor tasks, such as handwriting, buttoning, or cutting food. The LSVT LOUD® protocol, administered by trained speech therapists, can also help early on to keep vocal volume at a normal level. There are additional Parkinson’s specific programs, including PWR! Moves® and SPEAK OUT!®, which also provide great benefits. Your therapy course of care is not limited to these specific programs although you may find it helpful to know that such Parkinson’s programs exist. Since Parkinson’s affects each person differently, a therapy course at onset can establish the foundation and teach effective ways to manage each individual’s experience.
3. Establish an exercise routine
To put it simply, exercise is medicine. For those with Parkinson’s, research supports that aerobic (or cardio) exercise can provide disease modifying effects and slow disease progression. Being in a consistent exercise routine also helps manage the daily motor and non-motor symptoms and has great long term benefits. Working with a physical therapist early on can also help develop an exercise routine that works for you. Once therapy services conclude, you may also consider transitioning to a wellness program, led by a physical therapist, personal trainer, or other health professional to help keep you on track with your exercise regiment. Download and save this exercise fact sheet developed by the Parkinson’s Foundation and American College of Sports Medicine in 2020 that outlines the current exercise recommendations, taking into account the importance of variety, frequency, and intensity for maximal Parkinson’s benefits.
4. Make healthy eating choices
Many Parkinson’s symptoms are impacted by diet and nutrition. Recent research also suggests that a healthy diet can also slow disease progression. While there is not a specific Parkinson’s diet, aim to include a variety of fruits, vegetables, whole grains, nuts/seeds, and stay well hydrated. It is also generally recommended to minimize sugar, red meats, and alcohol content. Many of these are in alignment with widespread heart healthy diet recommendations. The effectiveness of some Parkinson’s medications can be impacted by meals (both timing and meal contents) so it is always best to speak with your physician regarding your specific medication regiment. The Parkinson’s Foundation also has some helpful diet related tips to manage symptoms that can be found here.
5. Become involved
As stated earlier, there are a wealth of knowledgeable and reputable Parkinson’s providers and resources available at your fingertips. You can locate a Parkinson’s specialist on the PWR! Moves Directory here or LSVT Certified Clinician Directory here. After identifying the appropriate local healthcare providers, it’s a good idea to branch out and see what services are available in your area. Rock Steady Boxing (RSB) is an excellent Parkinson’s specific group fitness program with over 800 locations internationally- find your closest RSB location here. Dance for PD also offers live and virtual exercise classes with more information available here. Urban Poling (or nordic walking) also has research backed benefits for Parkinson’s with additional information regarding certified trainers and clinics here. When looking for high quality information, check out any of the following organizations listed below. Many also offer educational webinars, Q&A’s, newsletters, and other relevant information so you can stay up to date with news and events.
Parkinson’s Foundation, American Parkinson’s Disease Association, Parkinson’s & Movement Disorder Alliance, Michael J Fox Foundation
Let’s Get Moving provides wellness services for individuals with Parkinson’s in the Bucks County area & virtually anywhere. When therapy ends, wellness begins. Click here to more about how a Parkinson’s specific wellness program can help you stay active in what matters most.
